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Thank gawd Heather that my allergies are mostly air related because I don't know what I would do if I couldn't eat a bunch of things. I have a few allergies to foods like eggs, scallops, potatoes (of all things), tomatoes, etc but I still eat them all since my reaction is minimal and hardly noticeable. My brother had it bad though and lived in those allergy oxygen tents as a child. Maybe this is payback for me (karma) for teasing him relentlessly all my life. I remember at Easter he got white chocolate since he was allergic to chocolate and man would I wave my chocolate bunny around his face to tease :forkoff:

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I hope your shots help you tremendously! My husband has very sensitive skin and bad allergies, too. He has had mysterious rashes before, and the doctors never could figure out what they were. We tried all kinds of things, and eventually they just went away. I have no idea which thing was the trigger, though. We changed detergents, shampoo, soap, and did the regular stuff to get rid of as much dust & pollen in our home as possible. If you haven't already, you might try switching to detergents, soaps, and shampoos that are non-allergenic - no dyes, perfumes, etc. - and cut out perfume completely.

 

I have a few allergies to foods like eggs, scallops, potatoes (of all things), tomatoes, etc but I still eat them all since my reaction is minimal and hardly noticeable.

 

Also, be careful about this. Allergies tend to worsen each time you are exposed to them. My father is allergic to corn, and because he was not careful about it, he now can't even have food cooked in regular vegetable oil that contains corn. Even a tiny exposure makes his tongue swell up so much that he has to get a shot at the ER. Better to cut them out while your reaction is still "hardly noticeable."

 

Good luck with all your allergy trouble! Hopefully the shots will start clearing things up in plenty of time for your conference.

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Well to be honest, I cheat..more than I should because the reactions aren't that bad for me. For some it's much worse. I was just amazed at how things are made and processed when I was diagnosed with this.

 

For example, corn syrup. Depending on where/how it's processed determines whether or not I can have it or not. Coke products have corn syrup that doesn't have gluten in it but Pepsi products don't. Isn't that weird?

 

When I was first diagnosed and it was REALLY bad, I would have my little list and the labels in front of me and sometimes had to call the companies to see if it was okay. Thank goodness it's not that bad anymore.

 

And since anything with flour is pretty much out, it helps me manage the cake and cookies that I intake. :)

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Oh, Tawnya, this is awful! OK, you had mentioned air cleaners. I used to work with a company that sold ionic air systems and they really seem to be the best. If you don't mind, I'll give your name to someone who currently works with a company that sells air cleaning systems. If you decide not to get that one (it's a bit pricey but David has air-borne allergies and swears by it rather than at it) the next best is the Ionic Breeze you see advertised on television. Let me know if it's OK to share your information.

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I actually already bought my aircleaners and they have helped me 100%. I went the hepa air filters 99.97% since from what I had read, the ionize ones didn't do as good of a job. They work great and I am truly happy with them so far!

 

http://www.bionaire.com/eStore/product.asp...2&ProductId=370

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Just an update on my allergies since it is not getting any better and I am looking in all avenues now for solutions. Many of you may have noticed I've not been around much as of late...it is because I am so sick with my allergies.

 

I was in emergency for the second time in two weeks. My allergies are to the point that they have tightened up my skin so bad that I can't even smile without it hurting. My skin is cracked, bleeding and very dry. My face has the swelling (which is causing major wrinkles in a short time) of a 70 year old I'm told LOL! The doctors have never seen anything like it and have no resolve except strong steroids which will not do me any good overtime. My eyes need drops every 30 minutes to water them up and all the doctors can say is relieve some of your stress. I AM STRESSED...this is what they tell me :( The rash, dryness and tightening go in a 10 days cycle from baby smooth skin to reptile like tight skin, then peeling, itching stages, etc.

 

I don't even look like myself lately with all the swelling. I've attached a pic incase anyone has seen this type of problem before, not that I'm happy to show how I look right now...heck I don't even like going out but again, I'm desperate to find a solution to this allergy problem. Again, it goes in a 10 day phase and that pic is taken on about day 7 which was Sunday. By tomorrow I will have a perfectly normal face again with no swelling, wrinkles or dryness...very odd.

 

I'm going to see a naturopath at 11am tomorrow and see if they can find an answer for me...wish me luck! I have waited for 3 months to get in to see this guy...he's supposed to be the best in town! ;)

 

T_sick.jpg

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I hope you get better soon and that they can find out what's causing your issues. I've never seen anything like the symptoms you possess except with a friend who was diagnosed with scleroderma. I HIGHLY doubt it's that since your symptoms appear to come and go.

 

I'll be thinking of you tomorrow.

 

:thumbup:

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Not a doctor and never heard of anyone with what you have,

 

but at least there is a pattern - and a clue!

 

Cold Pressed Flax Oil is my friend. I pour it on salads and use it instead of butter or margarine.

 

Looked at Udo Erasumus's site Didn't see anything on your specific case but couldn't hurt to ask the naturopath what he thinks.

 

I get seasonal disorder and look VERY pale and puffy in during the rainy Vancouver winter.

Flax Oil and a full spectrum light - my brain doesn't function on prozac.

 

I hope the naturopath is able to pinpoint the problem and fix it.

 

 

T

 

 

 

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Oh Tawnya!!! :bighug:

 

I also have what they have classified as "severe stress induced chronic dermatitis" though I must admit after reading your saga mine is far from what I'd consider severe.

 

Mine also runs in a "cycle", but a shorter one at 8 days. Thankfully I'm only plagued with severe flare ups a few times a year, but that seems to be increasing over time. Even with far fewer than you're experiencing I can completely relate to your frustration! All they do for me is have me apply clobetatsol topically and put me on steroids. The first dose they administer at the Dr. / Hospital and then heavy oral doses from there.

 

They've already warned me that they will not administer such high doses of steroids any more than every three months and if my flare ups continue to progress there will be little they can do for me.

 

As you can tell I'm of little help :( but wanted to let you know I do feel your pain, and this has motivated me to be more proactive in finding a solution to this problem.

 

Please keep me posted of your developments and I will do the same for you.

 

In the meantime if there's anything I can do to help you please let me know!!

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Tawnya, I'm so sorry you are going through all this. How terrible. Coming from a family chock full of allergy sufferers, I can understand. I have to carry an Epipen myself for some of my allergies. I've done the prick tests, the blood draws, the elimination diets, the shots, the whole nine yards.

 

For the most part, we've managed to contain my allergies to where they are managed reasonably well. I have to take meds year round as there are sooo many things I am allergic to. With me, my allergies started when I was very young. At 8 years old I was getting shots every other week for years. In my late teens and twenties, the allergies just disappeared. POOF!! Until I hit 30 & they went haywire again. This time though, to the point of needing serious management for my allergies.

 

In reading everything you've been going through, the first thing that came to mind was to ask if you've had a CT scan of your face done? Back a few years ago I had a horrid time with hives. Just out of the blue I started breaking out in hives from head to toe. Allergic shiners too. My whole body looked alot like your pictures. Docs couldn't figure it out. Tests after tests after tests & no one could pinpoint what was causing it. For 2 years I took allergy meds like they were candy and STILL had horrid breakouts. I still have scars from scratching in my sleep until I bled. It was truely horrendous.

 

My last allergist, on the recommendation of a MED STUDENT OF ALL PEOPLE finally sent me for a CT scan of my face with an Ear, Nose, and Throat specialist. One of the bones in my nose is actually leaning too far to one side. Not something anyone had ever noticed, but you could see it plain as day in the pictures. From what the allergist explained, it was putting pressure on my sinuses & making them swell. Which in turn was putting pressure on my eyes, my jaw, everything. The whole thing was "fooling" my body into thinking I had inhaled an allergen of some sort (because of your body's natural defenses when your sinuses get irritated and swollen) That's what was causing such horrendous reactions. No amount of meds would have fixed it because meds aren't designed to fix bone problems like that. They might reduce the swelling in my sinuses, but only temporarily & not long enough to stop the cycle of false reactions.

 

Ultimately, they had to do surgery to straighten the bone in my nose. My allergies are still a pain, but at least now I can manage them with meds & avoiding certain things.

 

I don't know if this is what's going on with you, but if there is a similar problem & you also have airborne allergies, it could really complicate the issue. It's worth a shot if they haven't already done it.

 

Sorry to hear you're suffering. Believe me, I can sympathize. I hope you have a comfortable night tonight.

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Hmmmmmmmm that makes me think a bit more.

 

I know that I have a deviated septum and as I didn't feel it was impacting me that greatly other than making me a bit more prone to sinus infections I haven't sought to correct that problem. Might be something worth looking into!

 

Thank you :)

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Wow, just reading the comments here before I head to bed here. All very interesting since I've been telling doctors for months that I feel it is all related to my deviated septum and problems with my nose. All have said no it isn't. But I swear it is all related. I've had real problems with my nose/sinuses for the past two years and that was when all these allergies started. I am going to research all this and make another appointment with my doctor and demand to see a nose specialist. I seen one about 8 years ago and he said I had a deviated septum and I could live with it and have the dry caky nose problems or get it fixed with that nose operation but either way it was not threatening in any way to my general health so I just ignored it and never had anything done. Maybe time to reinvestigate this?

 

Thanks so much for all your ideas so far as I feel if I am persistent enough I may get answers. You never know who will show up at this forum next and have the same thing or something similar. When I first posted this, I don't remember Brandy and Hexamus being here and maybe you two might have got me looking again into this...thanks :)

 

I'll keep you posted. This has been an ongoing thread for over a year now ;)

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Tawnya I am so sorry that you are still dealing with this. I really hope the naturopath can provide some new ideas and relief for you.

 

Please keep us updated

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Hi Tawnya:

 

I would definitely look into the possibility of the CT scan and the deviated septum. After reading this, it reminded me of my brother's partner, who has had major problems with allergies. He ended up having surgery on his nose to help alleviate some of the problems, though they are not all gone.

 

Also, I was trying to remember what I had when I was a teenager. I had it for about 2-3 months and I believe it was called psorisis rosacea, which is actually two skin conditions. Your face kind of reminded me of it. I was absolutely miserable; however my symptoms were from the neck down. My skin was red, bleeding, fish scaley, and peeling horribly. I have been doing some research and found a site that might be similar to what you have. At least it is something to think about and consider when you are trying to help those doctors figure out what is going on with you. :-)

 

http://www.internationalrosaceafoundation.org/

Edited by NaomiBlvs

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Wow, interesting information ladies.

 

Who would have thought a crooked nose could wreak so much havoc!

 

Perhaps a new cure for allergy sufferers is on the way .

 

T

 

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